Why Rare Diseases Day should be important to everyone

Rare disease day

This Sunday, campaigners from around the world will unite their voices under the banner of the 14th annual Rare Diseases Day.

This international event is coordinated by Eurordis – the voice of rare disease patients in Europe – every 28 February to raise awareness amongst the public and decisionmakers about rare diseases and their impact on patients’ lives.

Why we’re supporting Rare Diseases Day

We are incredibly proud to be featured on the Rare Diseases Day website as one of its Friends and to mark the annual event we will be raising its profile through our social media channels and on our website.

We do this because we believe that raising awareness of rare diseases is incredibly important as one in 20 of us will live with a rare disease at some point in our lives. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed.

Sadly, asbestos can cause more than a dozen serious health conditions, including several diseases that are classed as rare such as the malignant conditions known as mesothelioma and laryngeal cancer and the non-malignant condition called asbestosis.

About 2,500 people in the UK are diagnosed with the form of cancer known as mesothelioma every year. It develops in the lining that covers the outer surface of some of the body’s organs and is usually linked to asbestos exposure. Unfortunately, the outlook for mesothelioma patients tends to be poor because it doesn’t usually cause any obvious symptoms until it has progressed and it can develop quite quickly once it reaches this stage. Around half of people with mesothelioma will live at least a year after diagnosis. There is no cure for the condition.

Laryngeal cancer is a relatively rare disease that affects the larynx, more commonly known as the Adam’s apple or voice box. Its leading causes are smoking and excessive drinking of alcohol but workplace exposure to asbestos has also been identified as causing the condition. The five-year survival rate for patients is approximately 60%.

Asbestosis is a serious lung condition caused by long-term exposure to asbestos. The use of asbestos in building work was banned in the UK in 1999 so nowadays you’re most likely to come into contact with asbestos if your work puts you at risk of damaging asbestos in buildings which pre-date this. This can include professionals such as heating and ventilation engineers, demolition workers, plumbers, construction workers and electricians. There are some treatments which can help patients but there’s currently no cure for asbestosis once it has developed as it’s not possible to reverse the damage to the lungs.

How we’re helping support Rare Diseases Day

Our expert team at Acorn Analytical Services go above and beyond to educate people about the importance of managing asbestos safely so it doesn’t pose a risk to anyone. We promote awareness through our regular blogs, podcasts and our free book – Asbestos the Dark Arts.

We are also committed to backing organisations and events calling for change such as Rare Diseases Day. In addition, we are championing a new group of campaigners called ActionMeso which launched last year to bring together the mesothelioma community with one voice in a bid to eradicate asbestos and asbestos-related disease. We’re also in talks with the charity Mesothelioma UK about how we can work with it more closely and throughout February our Commercial Manager Sian Stone has been fundraising for the charity by running the length of nearly two marathons in exchange for donations.

As an independent asbestos consultancy we will continue to do everything we can through our day-to-day work to help keep people safe from the dangers of asbestos. We offer a comprehensive suite of asbestos consultancy services from asbestos air testing and asbestos surveys to removal management, and UKATA accredited training. We help businesses to solve all their asbestos challenges swiftly to save them time, costs and stress. With our help it’s easy to future-proof your business today, with innovative asbestos management, compliant to the most extensive of regulations.

Rare disease day

If you want to find out how to manage your asbestos safely call one of our team or use our online form to obtain your free quotation. If you would like further information or advice on asbestos and asbestos training, contact the team on 0844 818 0895 or Contact Us

To learn more about Rare Diseases Day click here

Neil Munro

I work in a dual role at Acorn Analytical Services focused primarily on growing and leading the business from our Northampton office base. My focus is on overseeing all sales, marketing and financial activities from Northampton. I assist clients with high-level asbestos management strategies and training. Together with Ian Stone I host our weekly podcast – Asbestos Knowledge Empire and I'm Co-author of Asbestos The Dark Arts and Fear and Loathing of Health and Safety.

Need Help? Request a Call Back

Request a call back from one of our expert Asbestos Consultants who will help you identify what you need

More Asbestos Articles

Sam Savage Commercial Director

Commercial Director Sam Savage talks about his first 3 weeks

Last month we announced Sam Savage had joined Acorn Analytical Services as our Commercial Director, working out of the Northampton office and covering the South of England. Sam joins the business from an another asbestos consultancy where he worked for more than 20 years, working his way up from a trainee right through to contracts … Read more

Asbestos Awareness Training

Asbestos Awareness Training – the importance of practising what we preach

At Acorn, we work hard to educate everyone about the dangers of asbestos. One of the ways we do this is through our UKATA accredited Asbestos Awareness training courses. Being a UKATA Approved Training Provider not only demonstrates that Acorn Analytical Services is committed to delivering the highest standard of asbestos training, it also means … Read more

Have you ever wondered what the consequences could be if a company fails to protect workers from asbestos exposure?

Asbestos exposure risk leads to jail sentences

Have you ever wondered what the consequences could be if a company fails to protect workers from asbestos exposure? At Acorn, we work hard to educate the public about the dangers of asbestos which remains the world’s biggest workplace killer. When asbestos is disturbed it releases tiny fibres into the air which can cause a … Read more

MPs want asbestos to be removed from public and commercial buildings within the next 40 years.

MPs fight for asbestos to be removed from public buildings

Last week, MPs called for all asbestos to be removed from public and commercial buildings within the next 40 years. The Government’s Work and Pensions Select Committee wants the asbestos to be removed because the substance remains the biggest workplace killer in the UK with around 5,000 deaths linked to it every year. Even though … Read more

During Global Asbestos Awareness Week charities and organisations around the world will be working hard to raise awareness about the dangers of asbestos which remains the globe’s biggest workplace killer.

Hitting back at hidden killer during Global Asbestos Awareness Week 2022

Today marks the start of Global Asbestos Awareness Week. Between now and April 7, charities and organisations around the world will be working hard during Global Asbestos Awareness Week to raise awareness about the dangers of asbestos which remains the globe’s biggest workplace killer. In the UK, the use of asbestos was banned more than … Read more

Acorn Analytical Services is proud to be helping women to #BreakTheBias.

#BreakTheBias – International Women’s Day 2022

Today, Acorn is incredibly proud to be supporting International Women’s Day. The United Nations began marking the global event back in 1977 and the day is now recognised as the focal point in the movement for women’s rights. This year means a lot to our diverse team at Acorn because the theme for 2022 is … Read more

International Women's Day Emma

International Women’s Day 2022

To mark International Women’s Day, we wanted to introduce you to a couple of Acorn Analytical Service’s fantastic female employees. The asbestos industry – like the construction industry in general – is a male dominated sector but at Acorn we are fortunate to work with several brilliant female employees, including asbestos analysts, asbestos surveyors and … Read more

Do you ever stop to think about whether you could be exposed to asbestos in your home?

Workers exposed to asbestos during refurbishment

Do you ever stop to think about whether you could be exposed to asbestos in your home? During the 20th century asbestos was used heavily by the UK’s construction industry and even though its use has been banned for more than two decades its legacy lives on in our homes, garages, workplaces and public buildings. … Read more

Rare Disease Day is held every year on February 28 to raise awareness and generate change for the 300 million people worldwide living with a rare disease

Rare Disease Day 2022

Did you know that Rare Disease Day is taking place on Monday? Rare Disease Day is held every year on February 28 to raise awareness and generate change for the 300 million people worldwide living with a rare disease and for their families and carers. More than 600 events will be taking place across the … Read more

The Government’s Work and Pensions Committee has been carrying out an inquiry into the HSE's approach to asbestos management

Asbestos management inquiry held by Government

Over the past few months, the Government’s Work and Pensions Committee has been carrying out an inquiry into the approach of the Health and Safety Executive (HSE) to asbestos management in buildings. There are six million tonnes of asbestos in the UK, most of which can be found in more than 1.5 million buildings across … Read more