Researchers call for help from mesothelioma patients and their families!
The Priority Setting Partnership, funded by the National Institute for Health Research, is bringing together people with mesothelioma, their families, carers and the healthcare professionals who treat them to help set priorities for mesothelioma research. A survey has been launched aimed at better understanding the diagnosis, treatment and care of people with the disease.
The Priority Setting Partnership would like to hear from anyone who is:
- A person living with mesothelioma
- A carer for, or family member of, someone with mesothelioma
- A bereaved carer or family member of someone with mesothelioma
- A healthcare professional working with people with mesothelioma
- An organisation representing the interests of people with mesothelioma.
Researchers hope that patients, carers and clinicians will raise concerns about their experience and allow for the compilation of 10 aspects of mesothelioma which could benefit from research.
Mesothelioma is a type of cancer that can develop in the tissues covering the lungs or the abdomen. It is a cancer of mesothelial cells. These cells cover the outer surface of most of our internal body organs, forming a lining that is called the mesothelium. Mesothelioma is a cancer which is currently incurable. Patients live, on average, for eight months following diagnosis. There is a direct link between the disease and the inhalation of asbestos fibres and it can take around 30 years for the effects to be seen.
The latest government figures show the mesothelioma caused 2,291 deaths in Britain in 2011 and the disease is set to reach its peak in 2020.
The Priority Setting Partnership survey is available at www.psp.nihr.ac.uk/mesothelioma/survey
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